SMA treatment: Afra, her brother asked for Rs 18 cr, receive Rs 46.78 cr
Kannur: Muhammed, the one-and-a-half-year-old boy from Kannur who was contracted with a rare disease, received Rs 46.78 crore after her sister Afra's emotional request for help broke everyone's heart. He needed Rs18 crore to continue the treatment. Malayalees showered the family with their help after the story of Afra and her brother went viral on social media.
The money received for the treatment for a rare genetic disorder called Spinal Muscular Atrophy (SMA) was transferred through multiple banks. Notably, 7,77,000 people carried out financial transactions primarily through two banks. The transactions vary in amount from Rs 1 to Rs 5 lakhs. Transactions that amount to more than Rs 1 lakh were donated by 24 people through Mattanoor Grameen Bank, and by 18 people through Federal bank, Kannur.
Though an application was filed in the bank to freeze the account after when the donation touched Rs. 18 crore. However, due to a technical glitch, it got delayed.
The treatment will commence in the first week of August. Kalliaseri MLA M Vijin said that the money needed for the treatment of Mohammed and Afra would be set aside and the rest would be spent on the treatment of other children with SMA. This will be done in consultation with the government, health ministry and legal experts.
Muhammad is the son of Rafeeq and Mariyumma from Matool in Kannur. Muhammad was unable to walk due to the illness. 15-year-old Afra had earlier been diagnosed with the disease. After that, her brother Muhammad was also diagnosed with the disease.
Zolgensma, a one-time use gene therapy drug, is imported at a cost of Rs 18 crore per dose. Mathrubhumi News informed Kerala about the ordeal of the family.