Kozhikode village comes together to find Rs 18 crore to treat 9-month-old's Spinal Muscular Atrophy


Siya Fathima with parents Siyad and Faseela

Vadakara: Siya Fathima is suffering from the severe illness of Spinal Muscular Atrophy (SMA) and her family is struggling to find the means for her treatment. Zolgensma, a gene therapy medicine for SMA, must be brought from America to treat the nine-month-old girl Siya Fathima. One does of this medicine costs Rs 18 crores. People of Chorode have taken it as a mission to help Siya’s family collect the money needed for her medicine.

With the convention that will be held at Athafy Auditorium at 3 pm on Monday, the fund collection activities will start.

Siya is the daughter of Chorode natives Siyad and Faseela. Siya started showing difficulties in movement three months after her birth. The infant was taken to the Paediatric Neurology Department at MIMS Hospital in Kozhikode, where the doctors expressed their concerns about the child having SMA. Siya was found to be suffering from type 1 SMA in the tests conducted in Bengaluru.

The same was confirmed by the doctors at Beach Hospital in Kozhikode and SAT Hospital in Thiruvananthapuram.

Siya’s family says that she cannot hold her head up even after nine months. She is also having trouble sucking, eating and breathing.

A temporary committee for fund collection has been formed with Chorode panchayat president PP Chandrashekaran as chairman and KP Abdul Azeez as convenor.

A new account has been opened in the name of Siya Fathima in the Vadakara branch of Federal Bank. Account number: 10710200016463. IFSC: FDRL0001071.

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