Kerala yet to start home therapy for haemophilia; at least 10 patients died in past year


TS Dhanya

Representative Image| Photo: Canva.com

Kochi: At least 10 haemophilia patients have died in Kerala in the past year due to delay in the intravenous administration of blood products. Back in April, health minister Veena George had assured the setting up of a home therapy system to mitigate the issues related to delays in administering clotting factor concentrates (CFCs) or factors VII, VIII and IX. However, the government failed to keep the promise, leading to the death of several haemophilia patients.

Haemophilia is a medical condition that reduces the ability of blood to clot, causing the person to bleed severely from even a slight injury. Bleeding in haemophilia patients may lead to death if the blood clotting factor is not administered on time.

Lifelong prophylaxis treatment is given at the district centres twice a week. However, the patients have to go to the medical centre. Under home therapy, trained patients or their relatives can do it at home. The families now want to keep at least two doses of the medication in their house for emergencies.

Earlier, the blood products for therapy were available through Karunya Benevolent Fund Scheme. However, they are now not abundant after the Ashadhara project started.

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